“When I got my daughters diagnosis I was distraught and only thought the worst case scenario, I felt lost and as if I had nobody to turn too. Although I had great support from family and friends I still felt alone and as if nobody quite knew how I was feeling. Months after my daughter’s diagnosis and after trawling through endless help and advice pages somebody recommended HemiChat. That first day I joined the group, it felt like a massive sigh of relief, I read pages and pages of posts from other families in my situation and finally felt like I had people that would understand me. This group has been brilliant, I’ve been able to ask others for advice or guidance as well as just have a rant here and there and others truly do understand where I’m coming from. I can share my lows and highs and I know I’m not judged (even if I do go on)
This group has guided me so much and helped me through dark times! I also feel as we are all one big happy family, and when my daughter achieves long awaited milestones I find that I can’t wait to share them with all too. And this is because WE ARE ONE BIG FAMILY!!! I also love that what’s shared is soley private, and not shared.
My family attended our first meet Sunday funded by HemiChat and it was brilliant meeting the faces behind names and other children. The work HemiChat do is amazing; and it’s a great privilege to be one of the members.
I would also like to say a big Thank you to those that work hard and endlessly behind the scenes if it wasn’t for you all this group/charity wouldn’t be here, so for that id like to say a personal big Thank you. Here’s to many more years of Hem iChat the ever growing family”